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SICKLE CELL

COMMUNITY CONSORTIUM

AGENDA

Office Desk

9:00 AM

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10:00 AM

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11:00 AM

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12:00 PM

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1:00 PM

 

​​2:00 PM

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3:00 PM

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4:00 PM​

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5:00 PM

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​​6:00 PM

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7:00 PM

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Morning Wellness: A Morning Wellness Walk w/ Tyla Washington

 

Opening Plenary: State of the Consortium

 

Media Training: The Basics 

(General information to appear polished and profession in visual media)

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Community-Engaged Research in Gene Therapy​​

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Sponsored Lunch - A Conversation with Pfizer Pharmaceuticals (Impact Sponsor)

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Patient-Engaged by Design:  How the Patient Voice shapes clinical trial design​

 

Media Training Workshop for CBOs

(Tips and Techniques for the one-on-one interview in visual media)

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Building Your Advocacy Experience (IPCA)

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Workshop Breakout​

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Media Training Workshop for IPCAs
(Tips and Techniques for the one-on-one interview in visual media)

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Workshop Breakout

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CBO Workshop

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Creative Content - General: Film Once, Use It Many Ways)

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Recording Studio Time

 

Creative Content - Advanced: Introduction Video and Series Capture Strategy

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Recording Studio

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Creative Content-Advanced

 

Workshop and Mentor Support

 

Recording Studio

2026 Sickle Cell Community Consortium

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