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SICKLE CELL

COMMUNITY CONSORTIUM

AGENDA

Office Desk

9:00 AM

10:00 AM

11:00 AM

 

 

12:00 PM

1:00 PM

 

2:00 PM

3:00 PM

 

 

 

 

 

4:00 PM

 

 

 

 

5:00 PM

6:00 PM

 

 

7:00 PM

Morning Wellness: A Morning Wellness Walk w/ Tyla Washington

 

Opening Plenary: State of the Consortium

 

Media Training: The Basics 

(General information to appear polished and profession in visual media)

Community-Engaged Research in Gene Therapy​​

Sponsored Lunch - A Conversation with Pfizer Pharmaceuticals (Impact Sponsor)

Patient-Engaged by Design:  How the Patient Voice shapes clinical trial design

 

Media Training Workshop for CBOs

(Tips and Techniques for the one-on-one interview in visual media)

Building Your Advocacy Experience (IPCA)

Workshop Breakout

Media Training Workshop for IPCAs
(Tips and Techniques for the one-on-one interview in visual media)

Workshop Breakout

CBO Workshop

Creative Content - General: Film Once, Use It Many Ways)

Recording Studio Time

 

Creative Content - Advanced: Introduction Video and Series Capture Strategy

Recording Studio

Creative Content-Advanced

 

Workshop and Mentor Support

 

Recording Studio

2026 Sickle Cell Community Consortium

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