
COMMUNITY CONSORTIUM
AGENDA

11:00 AM
2:00 PM
4:00 PM
5:00 PM
6:00 PM
Sickle Cell Corporate Council & Stakeholder Convening Exploratory Outlook
Registration/Check-In
Creative Content - General Session: Getting Comfortable On Camera + Understanding B Roll - Sharonda Sikes
Creative Content - Advanced: Write & Rehearse Your Anniversary Message -
Sharonda Sikes
Reception/Networking Event
9:00 AM
10:00 AM
11:00 AM
1:00 PM
2:00 PM
3:00 PM
4:00 PM
5:00 PM
6:00 PM
Morning Wellness: Mindful & Intentional Leader - Tayo Togba
Opening 9th General Assembly: A Legacy of Leadership -
Dr. Lakiea Bailey
Breakout Sessions
Grant Writing Workshop - Dondra Ward Uzoka
The Effective Use of A.I. Prompts in Professional Advocacy
for IPCAs - Dr. Alexcius Branch
Making W.A.V.E.S.: Maximize Your Impact and Grow Your
Influence as an IPCA - Daphne Valcine
Sponsored Lunch - Pfizer Pharmaceuticals - Angela Raimer
Breakout Sessions
Beyond the Post: Understanding and Using Social Media
Analytics for CBOs - Kierra Coffer
The 7 Levels of Energy Leadership: High-Impact Strategies to Utilize in the Midst of Both Challenges and Opportunities - Daphne Valcine
Breakout Sessions
The Current State of Sickle Cell Treatment: Pipeline or Pipe Dream
Building Credit for Nonprofit Organizations - SCDAA - SCD Master Class
Navigating DEI and Executive Orders - Dondra Ward Uzoka
Creative Content - General: Telling Your Story with Impact: The Power of Testimonials - Sharonda Sikes & Panel
Creative Content - Advanced/Workshop: Draft & Practice Your Testimonial Workshop - Sharonda Sikes
Creative Content - Recording Studio/Laboratory
9:00 AM
10:00 AM
11:30 AM
1:00 PM
2:00 PM
4:00 PM
5:00 PM
6:00 PM
7:00 PM
Morning Wellness: Yoga, Meditation, Breathing - Tayla Washington
Community Updates
OASH - Captain David Wong
Marti Health - Michael Smith
ASH - Ivy Welch
ACEP/EDSC3 - Dr. Caroline Freirmuth
ASH-RI - Justine Nicholas
Managing Capacity Presentation & Workshop: Dr. Patrice Buckner Jackson
Sponsored Lunch - Vertex Pharmaceuticals
Industry Updates
CSL Behring - Greg Kato
Emmaus - Karen Gant & Kazon Neely
Vertex - Dr. Latsha Lee
Beam - Elodie Ontala
bluebird bio - Ravi Singh
Agios - Dr. Amber Yates
Breakout Sessions
Purpose-Driven PR: Making Media Work for Your Mission - Alexandria Green
Pfizer Small Group (Meet the PALs)
Creative Content - Advanced Script + Shoot: Commercial Planning + Testimonial Polish
Creative Content - Advanced: Lights, Camera, Confidence
Laboratory & Recording Studio
9:00 AM
10:00 AM
12:00 PM
1:00 PM
2:00 PM
6:00 PM
Morning Wellness: Yoga, Meditation, Breathing
Partner Projects & Updates
Infrastructure Lunch & Special Election
Press Day
PARTNER SERVICES & SUPPORT SESSIONS
Creative Content Workshop, Laboratory, & Recording Studio
10:00 AM Breakfast Buffet
11:00 AM Business Meeting & Closing of the 9th Seated General Assembly