COMMUNITY CONSORTIUM
Resources
For more than 50 years, Sickle Cell Disease Association of America, Inc. and its 50+ member organizations and affiliates have demonstrated how community based organizations can work, as partners with medi cal facilities and local and state government agencies, to pursue national health care objectives.
Sickle Cell Data Collection Program
The Sickle Cell Data Collection Program now funds efforts in 16 states to study long-term trends in diagnosis, treatment, and healthcare access for people with sickle cell disease in the United States.
Sickle Cell Medical Advocacy
Sickle Cell Medical Advocacy was initiated by sickle cell patients and caregivers with a primary goal of dismantling the barriers that obstruct effective emer gency room and hospital treatment for patients with sickle cell disease
Sickle Cell Community Consortium (SC3)
The Sickle Cell Community consortium is comprised of sickle cell community-based organizations, patient and caregiver advocates, community partners, and medical and research advisers that applies a model of collective impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the partnerships best equipped to implement those strategies.
Sick Cells
Sick Cells’ mission is to elevate the voices of the sickle cell disease community and our stories of resilience.
DiscoveringMoorer2Life
Our mission is to design essential, comprehensive programs and services that will enhance the lives of minorities who live with chronic illnesses and rare diseases. We model a person-centered approach by creating a culture of health education, health literacy, health promotion, and enhanced lifestyle.