Event Book

It is with great pleasure that the Sickle Cell Community Consortium (SC3) invites you to the upcoming 8th Annual Leadership Summit & General Assembly of Sickle Cell Patients, Caregivers, & CBOs.   

 

This annual assembly, composed of a diverse range of sickle cell stakeholders, and patterned after the United Nations, places patients and caregivers (of all ages) in top leadership positions, guiding the direction of advocacy, research, education, legislation, and policy.   Following the SC3 motto “Nothing For Us, Without Us,” we are delighted to announce the 2024 theme “Lead the Way: A New Era in Sickle Cell Advocacy” and are eager to share the theme with an extended audience of both in-person and virtual attendees via Zoom Events. 

 

Post-pandemic, the SC3 team has worked to stay ahead of the curve.  Our goal has been to help prepare our Partners to thrive in this new world with its ever-changing rules.  The new world isn’t coming, it is already here, and with it, advocates and CBOs must be prepared to address challenges that do not yet exist, using tools that have not yet been invented.  The theme of last year’s Summit was “Expert Advocacy in the Digital World,” with topics ranging from “Cryptocurrency and the non-profit” and “Digital privacy compliance” to “Alternative funding sources” and “Digital grant reconciliation”.  We learned that just as our patient communities, government agencies, and alternative funding sources are engaging and transitioning to online spaces, we, too, must learn to co-exist in the digital space.  

 

This year, we focus on “Leading the Way” with training and workshops designed to embrace this new era in advocacy, marked by the newly approved FDA gene therapies for sickle cell, the rise of Artificial Intelligence (A.I.) technologies, and increased understanding of collective self-care and awareness of the devastating consequences of leadership burnout and compassion fatigue.  

We are seeking support for this event and hope you will consider supporting us at the Platinum level or higher. Unique sponsorship packages are available, along with opportunities to tailor packages to meet individual needs. We are eager to continue this forward momentum and look forward to developing new relationships and partnerships necessary to support our collective goals.                             

The Summit is the primary meeting of the Sickle Cell Community Consortium. All Consortium partners travel to Atlanta Georgia to participate in the Leadership Summit and to convene the annual General Assembly of Patients, Caregivers and CBOs.

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This meeting serves three purposes: